The Royal Brompton Hospital Adult Cystic Fibrosis Centre is one of the largest centres in Europe and treats approximately 600 adults from the age of 17 years. We aim to provide high quality, evidence-based healthcare in a supportive and caring environment.
The team
The cystic fibrosis multidisciplinary team (CF-MDT) is made up of consultants, research fellows, clinical nurse specialists, specialist physiotherapists, dietitians, psychologists and pharmacists. The CF administration team includes a registry co-ordinator, administrator and secretaries.
Clinic
There are three CF clinics a week on Monday, Tuesday and Friday.
We offer both face-to-face and virtual clinics, which are available each week. Each clinic is staffed by at least two consultants, plus junior doctors, physiotherapists, dietitians, pharmacists, and clinical nurse specialists. Additionally, there are monthly CF-related diabetes, maternal health and gastroenterology clinics in partnership with colleagues from Chelsea and Westminster Hospital.
Day case review
Adults with CF who are unwell and need to be reviewed urgently can be booked onto the day ward via the clinical nurse specialists.
The day ward is available for reviewing and treatment planning for patients, including home intravenous antibiotics, investigations, or to see members of the CF-MDT for individual consultations.
There is a day case ward available for individuals to be seen if they are unwell and need to start home intravenous antibiotics, for investigations, or to see members of the CF-MDT for individual consultations.
Inpatients
All patients are admitted to single rooms with an en-suite bath or shower. For younger people with CF, links with the Chelsea Community Hospital School mean that teachers are available to support studies during an admission.
Research
The Royal Brompton Hospital paediatric and adult CF centres work in partnership in research, quality improvement and service delivery. As a partnership, we are a designated European Cystic Fibrosis Society Clinical Trials Network Site (ECFS CTN), which provides opportunities to lead and participate in trials of new treatments across Europe. The Partnership is also part of the Cystic Fibrosis Trust Clinical Trials Accelerator Platform (CTAP) – London Network.
Find out more about the CTN and the CTAP.
National Cystic Fibrosis Registry
Both the adult and paediatric CF centres enter annual data onto the UK CF Registry following individual consent for anonymous data to be recorded. Find out more.
New patients
If you would like to be referred to this centre, we will need a referral letter from either your GP or, if you currently attend a CF centre, your CF consultant.
There are three adult CF centres in London, so please check which one is closest to you before sending your referral. Many of our referrals come from people living in the North-West London region, due to distance and proxmity to Royal Brompton hospital.
Contacts
For enquiries please contact Patricia Granahan: p.granahan@rbht.nhs.uk