The purpose of the attached document is to set out guidelines to ensure a standard approach to care for adults with cystic fibrosis (CF) looked after at Royal Brompton Hospital. The adult CF service is a specialist CF centre as designated by the CF Trust Clinical Standards 2011.
Specialist centre care at Royal Brompton Hospital offers access to comprehensive care from a multidisciplinary team consisting of consultants specialising in CF, junior doctors, clinical nurse specialists, dietitians, physiotherapists, clinical psychologists, pharmacists and a welfare rights advisor.
The document is written by the expert CF multidisciplinary team at Royal Brompton Hospital for use by any staff involved in caring for adults with CF. It also serves as a guide for the adults attending the Royal Brompton CF Service. We are delighted if it provides information for others interested in CF care.
The service for adults with CF was founded at Royal Brompton Hospital in 1965 by Sir John Batten. Since that time the service has grown under the leadership of Professor Hodson and Professor Geddes to become the largest clinic in Europe caring for 600 adults.
The Royal Brompton team led the way in terms of multidisciplinary teamworking for adult CF care and was responsible for the introduction of many innovations that we regard as routine today. As survival increases and our paediatric colleagues refer 16 year olds with lung function in the normal range, it is now our challenge in the second decade of the third millennium to ensure we continue to enhance care and improve outcomes for adults with CF, ensuring that each individual receives expert advice and treatment tailored to their particular needs.